Fundraising

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Jill is REACHing for Neve with a half marathon - 11 October 2015 - DONE!

After not being able to run to the end of the road, Jill is getting out from behind her desk and taking on the Vitality Oxford Half Marathon on the 11th October.

Please sponsor Jill by clicking on the Paypal button opposite and make your donation. We set ourselves a target of raising £10k in 12 months and we are very nearly there! All money goes towards Neve's therapies to help her have the best life possible.

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Watch out Yorkshire - the boys are on their way! - 2 and 3 July 2015 - DONE!

Seven very brave friends will be donning their lycra and attempting the first 2 legs of last year's Tour de France across the Yorkshire hills. Just to put that into perspective that is almost 400km in 2 days, over 6k of vertical climbing and is likely to mean between 14-18 hours in the saddle - ouch! And why are they willingly putting themselves through so much pain? Well, they are fundraising to get Neve a Support Dog. Best of luck boys and a huge THANK YOU!

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Grant and Carl's Coast2Coast Triathlon - 3 May 2015 - DONE!

Grant Wyatt and Carl Beetham, stalwart supporters of Neve, have set themselves one mighty challenge this time around. It will see them undertake:

- a full 26.2 mile marathon

- the traditional Coast to Coast cycle route from St. Bees Head (W) to Robin Hood Bay (E), a distance of 170 miles with some punishing hills

- a 2-mile swim in Lake Windermere with the water temperature a balmy 8 degrees!

All all this in just 24-hours - AMAZING!

PLEASE, PLEASE sponsor Carl and Grant via Paypal (to the left) and help them raise funds for Neve's ongoing therapies that are really helping with her epilepsy, autism and developmental delay.

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Anna is REACHing for Neve with a half marathon - 10 May 2015 - DONE!

Already one of the top ten half marathons in the country, Vitality Run Hackney is the fresh new half marathon to hit the capital! On May 10th 2015 Hackney will close its roads to cars and open them to thousands of runners for Vitality Run Hackney Half Marathon 2015. The route will take us through Hackney, Broadway Market, London Field and end in the iconic Queen Elizabeth Olympic Park. Thank you, Anna and best of luck!

PLEASE, PLEASE sponsor Anna via Paypal (to the left) and help them raise funds for Neve's ongoing therapies that are really helping with her autism and severely delayed gross and fine motor skills.

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Jake, Oscar and Lewis are running for Neve! Windsor 5K 'Glow Run' - 25 April 2015 - DONE!

Neve's big brother, Jake, and his best friends Oscar and Lewis, did a 5K to raise money for Neve's Trust. They ran round Dorney Lake in the dark with Neve's carers Kate and Hannah and friends and wore lots of florescent gear and glow sticks. It was a LOT of fun!

 

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Family Fun Day at SportsAble, Maidenhead - DONE!

The Wonderful Kate and Hannah ran a stall at the Family Fun Day on 28 March. They sold crafts and cakes and ran a tombola with amazing prizes donated by family and friends. The raised a fantastic £200 which will be split between Dravet Syndrome UK and Neve's Trust

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The Theatre Academy (TTA) present Hairspray 28 October - 1 November 2014 - Done!

TTA are a local theatre group that boasts some seriously talented kids! Jake is a budding Junior at TTA and we were so excited that the after show collection was for 'Neve's Trust' this time around. It really does mean so much that they chose to support Neve.

The show was performed at The Theatre Royal, Windsor, and was one of their best yet. Thank you TTA!

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Carl is Running for Neve - 26th october 2014 - Done!

Carl did The Great South Run and raised money for Neve in the process. Thank you Carl - top bloke!

You can sponsor Carl via Paypal at www.stayclosetoneve.com


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Ian Lathey is REACHing for Neve - big style!

ian has set himself the target of doing a challenge each month for the next 12 months! These will include a triathlon, mud runs, duathlons, a 10k, various cycle rides and a half marathon.

What can we say - Ian you are A-MAZ-ING!

You can sponsor Ian via Paypal at www.stayclosetoneve.com


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Dan Mason is REACHing for Neve - 16 August 2014 - Done!

Dan is taking on Tough Mudder South West on 16th August. Sprawled out over hundreds of acres of rough and rigorous terrain, Tough Mudder South West is arguably the UK’s most mesmerizing Tough Mudder. Featuring some of the regions highest climbs, deepest mud pits and tiresome tribulations, this course is as draining physically as it is mentally. Thank you, Dan, and best of British!

Dan, Harry and Ryan

Sponsor Dan via the Paypal button on the left-hand side of Neve's home page.

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Ellie Callear is REACHing for Neve - 31 August 2014 - Done!

A huge shout out for Ellie who is undertaking her first Triathlon to raise money for Neve. This will be taking place on 31st August and involves a 400m swim, 20km bike and 5km run. Ellie said, 'It will be a challenge but it's worth it for what the money will go towards!' Good Luck and thank you!

Sponsor Ellie via the Paypal button on the left-hand side of Neve's home page.

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'REACH for Neve' Fundraising 2014-15

REACH for Neve (Rewarding, Exciting and Adventurous CHallenges for Neve) is our latest fundraising initiative with the goal of raising £10,000.

The REACH fundraising campaign is being spearheaded by family friends Kate and Molly, who, over the next thirteen months, will be undertaking 6 Rewarding, Exciting and Adventurous CHallenges, one for each year of Neve's life. These are:

1. Sky Diving

2. London Night 5km 'Survival of the Fittest'

3. Canyoning in the Brecon Beacons

4. Walking the complete length of Hadrian's Wall

5. Molly and Kate's Three Peaks Challenge (Ben Nevis, Scafell Pike and Cadair Idris)

6. Windsor Half Marathon

We spend at least £10,000 a year on therapies and equipment for Neve and this is only possible through the amazing generosity of family, friends and well-wishers. These therapies are really helping Neve in all aspects of her development and she continues to make progress despite dozens and dozens of daily seizures. So please REACH into your pockets to sponsor Kate and Molly or REACH into your own reserves and do a fundraising challenge yourself. If you can raise money for Neve please get in touch by emailing This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Sponsor Kate and Molly via the Paypal button on the left-hand side of Neve's Homepage.

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Matthew Peace Brighton Marathon Attempt 2013 - Done!

Matt did his first (and only) marathon on Sunday 14 April and did it to help raise funds for Neve’s Trust. Apparently Matt was an aspiring athlete in his younger days but he’ll be the first to admit that exercise has not been his friend since. However, his goal of finishing in under 5 hours was achieved and so a big THANK YOU Matt!

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Windsor Clinic Three Peaks Challenge 2012 - Done!

Wendy and Jess successfully completed the Three Peaks Challenge on the weekend of 18th August, and although it was a real physical challenge, they were determined to do it to help raise money for Neve. With her cheeky smile and amazing bravery they couldn't resist doing something to help. Thanks so much guys.

3 peaks

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Wexham Park Golf Day - 24 August 2012 - Done!

Friends of Sue and Mark Dorrington held their annual golf day at Wexham Park Golf Club and kindly raised money for Neve's Trust. The event was in memory of Gavin's brother-in-law. It took place at a very appropriate venue as we have overlooked the course when Neve has been in Wexham hospital. Thanks to everyone involved and we hope it is a fantastic day.

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Manu's Ironman 2012 - Done!

'Team Neve' stalwart and Graham's work colleague, Manu Blanchard not only completed his first Ironman but did it in style, finishing in an incredible 11 hours and 4 minutes. Congratulations Manu on a remarkable achievement and a huge thank you for supporting Neve once more.

N.B. He also became a Dad again just 2 weeks afterwards, to baby Maxime - that will slow him down!

Iron Manu

 

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Carl & Grant's 'Tens & Fives Challenge' - Done!

Carl & GrantTens & Fives Team

First things first, Grant Wyatt, Tony Marsh, Ty Elleker and myself decided some time ago to go a bit long and undertake an adventure for Neve named ‘tens & fives’ - 10,000 ft of ascent/descent of the mainland’s largest mountains (Ben Nevis, Scafell Pike and Snowdon), a 500 mile cycle between them and 1000m swim across Lake Windermere, all within a four day target. Here’s the brief tale and the fully unadulterated expose can be trawled through on www.carlbeetham.com :

No-one told me Ben Nevis was THIS high. And steep. And cold. Very cold with two or three foot of iced snow towards the summit. Ben Nevis is a belter of a hill and, as it turns out, somewhere between Scafell Pike and Snowden: not as brutal as Scafell but way harder and much prettier than Snowden, even in the pitch black. And get this as a thought for the day. At 2.24am on Monday 28th May, no-one was higher than I was in the whole of mainland Britain. At that time I was THE tallest amongst you all. 112 arduous cycling miles followed until our first overnight stop in lovely East Kilbride. Not.

The next day dawned brightly and with 145 miles to do we were all happy about that. Until a sign for Little Langdale came in to view but with a helluva warning – 25% gradient. Uh oh, to be faced with a one in four hill after 140 miles just ain’t cricket and it was an absolute shocker, evidenced by the fact that we passed at least three or four other cyclists walking it. A couple of Yates’ bitters at The Old Dungeon Ghyll have never been more welcome.

Scafell Pike at 5.300am was its usual shocker of a mountain and we were already dreading the chilly waters of Windermere. And do you know what? It was fantastic! The water temperature at about 14 degrees was perfect for this length of swim and in less than 46 minutes we were back on dry land and onto the bikes for a quick-ish 70 miles into and off we went with God’s country, Lancashire! And it rained.

And it didn’t stop raining for the whole of the last miserable day. 110 hard miles followed by 4000ft up Snowden was a day to forget and it was hard, hard, hard. The last 30 miles were put to the sword humourlessly with no-one speaking a word. It was solely a case of grind them out, get it finished and get up and down that mountain. And what a shaley, slately, slag-heap of an excuse for a mountain Snowdon is. Why it’s tarmac’d at the bottom and there’s even a railway that goes to the summit. That’s just cheating.

Done. Finito. Now let’s go home.

For the record, we travelled a total of 457 miles and climbed an elevation on both foot and bicycle of 28,769 ft. The escapade took 93 hours and included 61 hours on the go (43 hours of constant movement), with an estimated sleep time of 14 hours leaving 18 hours drinking time! Never again has never been more pertinent.

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Fiona Wright...Ran!

Royal Parks Half Marathon, 9 October 2011

She finished and in a respectable 2 hours 18 minutes. The old adage of 'could have done with another month's training' was quickly deployed but these things are supposed to be a challenge and she certainly earned every penny that was donated by friends and family. Well done Fi, your entry into the London Marathon has already been submitted.

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Neve's Canoe Challenge - Done!

111 miles along the Thames from Cirencester to Windsor, 12-14 August 2011

Neve's Challenge in 2011 involved canoeing from the source of the Thames near Cirencester to Windsor, a massive 111 miles in 3 days.  That equated to 100,000 paddle strokes, 53 locks to 'portage' (get out of the canoe and carry it to the other side) and at an average speed of 3mph  meant about 12 hours each day in the boat. It was a worthy challenge to highlight the severity of Neve's illness and was massively out of our comfort zones, having had to learn the basics of canoeing (which is easier than it looks in racing canoes) and taking plenty of cold dips in the Thames. As well as being joined by old friends, Steve Carter and Jason Haigh, the double Olympic rowing champion, Steve Williams took part to raise money and awareness for Neve and Dravet Syndrome - Steve's now a fully signed up member of 'Team Neve'. Thanks to Trevor at Richmond Canoe Club and Richard Harpham for keeping us afloat, to Katrina for the 'relaxing' physio and to Mel for feeding the engines, we really couldn't have done it without you. It was seriously tough!

 

Graham - Steve C - Steve W - JasonSteve & GrahamFinish

 

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Carl's End2End Challenge - Done!

Carl Beetham's Land's End to John O'Groats solo cycling challenge for Neve

Can you imagine cycling for 8 days on your own, through wind and rain and then having to sleep under canvas? Carl completed the ultimate bike ride unaided and with only himself to talk to (maybe that's why it it took him 8 days!) - a truly incredible achievement. A huge thank you from Neve and her family for putting your body (and mind) on the line and raising much needed funds for Neve's Trust. His legendary status is now secure.

 

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Helly Hansen Challenge - Done!

December 2010

They were cracking the ice down at Hawley Lakes on Sunday morning but that didn't stop our team from taking on 4 hours of physical endurance. Apart from a slight rudder malfunction with the kayak it all went to plan and they made it back together and in one piece. To date they have raised a fantastic £800 which will go a long way in helping Neve with her on-going treatments and medical support. Thanks to all the guys and to Jessica for getting them there on time and standing around in arctic conditions. You should be very proud of what you have done.

Many thanks Luke, Javier & Aaron (aka. Two Roast Beefs & a Chilli)

 

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Slough Fire Station Car Wash 2010 - Done!

Thanks so much to Sue, Mark and all the guys at Slough Fire station who raised an amazing £1,750 for Neve. This money will go towards the cost of treatment at 'Brainwave', an organisation that helps children with disabilities and developmental delay achieve their potential.

Slough Fire BrigadeMark Binfield

 

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Neve's Cycle Challenge 2010 - Done!

300 miles from Land's End to Windsor, 24-26 September 2010

After a very tough 300 miles of cycling we rolled into Windsor to a fantastic welcome and most importantly to a big hug and kiss from my beautiful little girl. We are incredibly grateful to everyone who has donated and for your support of Neve. Jason, Andy (and Emmanuel on Day 3) and I really did take our bodies to the brink and Tim did an amazing job driving the support car and keeping us on track. Already thinking what my next challenge could be so watch this space..! Cheers Graham (Neve's Dad)

Land's EndBBC Radio CornwallFinish


 

Can You Help?

If you think you could help to raise funds for Neve then we would love to hear from you. Do you belong to a club or society that raises money for good causes? Are you doing a fun run, half marathon or other sporting event for which you could be sponsored? Do you fancy holding a coffee morning, garage sale or raffle in aid of Neve?

We can provide sponsorship forms, information leaflets, thank you letters and regular updates about Neve's progress and details of how you can get in touch can be found on the Contact Us page.

If you'd like to donate, please click here ...
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